Chronic Respiratory Disease - signposting

This is a compilation of key existing research and evidence, including links to publicly accessible content and sites with restricted access for registered users. 

It is not a comprehensive list of all resources available. 

If you think there are key resources missing, send an email to publichealthintelligence@brighton-hove.gov.uk  

Introduction

Respiratory disease affects one in five people and people may live with these diseases as a chronic condition for life, referred to as Chronic Respiratory Disease (CRD). Respiratory disease is the third biggest cause of death in England. Lung cancer, pneumonia, and Chronic Obstructive Pulmonary Disease (COPD) are the biggest causes of death.

View the NHS long term plan.

NHS Overview web pages

Respiratory diseases include the following conditions, and these links take you to the NHS conditions pages which gives more information on each of the conditions, their causes, symptoms, diagnosis, treatment and living with these conditions:

• Asthma
• Chronic Obstructive Pulmonary Disease (COPD)
• Cystic fibrosis
• Lung cancer
• Pneumonia
• Interstitial Lung Disease (ILD)
• Pulmonary hypertension 

Local  

Joint Health & Wellbeing Strategy, 2019 to 2030 (Brighton & Hove City Council)

This strategy sets out our vision for the health and wellbeing of people and communities in Brighton & Hove, together with the core principles which will guide local action to deliver the vision. It presents a shared view of where we are and of the challenges and opportunities that we face. 

View the Joint Health & Wellbeing Strategy, 2019 to 2030.

Improving Lives Together (Sussex Health & Care NHS)

This sets out the current ambition across NHS health and care in Sussex for a healthier future in Sussex.  Includes strategy, shared delivery plans, health & wellbeing strategies by area and data profiles. 

View the Improving Lives Together strategy.

National

The NHS England Long Term Plan for respiratory disease

The NHS Long Term Plan identifies respiratory disease as a clinical priority. It outlines how the NHS will target investment to improve treatment and support for people with respiratory disease, with an ambition to transform outcomes to equal, or better, our international counterparts. 

The Major Conditions Strategy 2023 framework identifies six groups of conditions which are collectively the greatest contributors to ill-health and early mortality, including respiratory diseases.

The six conditions represent the cause of over 60% of the years lost to early death or lived in ill health. It recognises that people may have more than one of these conditions and aims to work on addressing similar causes and risk factors.

View the NHS England Long Term Plan for respiratory disease.

Core20PLUS5

Core20PLUS5 is a national NHS England approach to inform action to reduce healthcare inequalities at both national and system level. The approach defines a target population – the ‘Core20PLUS’ – and identifies ‘5’ focus clinical areas requiring accelerated improvement. 

It includes Chronic Respiratory Disease with a clear focus on increasing levels of vaccination (influenza, COVID, and pneumococcal) in Chronic Obstructive Pulmonary Disease (COPD) to reduce exacerbations and emergency hospital admissions.

View theCore20PLUS5 for adults.

Core20Plus5 for children and young people includes a focus on asthma care and treatment.

View the Core20Plus5 for children and young people.

Respiratory conditions (NICE)

NICE provides guidance, advice and quality standards for conditions associated with respiratory conditions.

View the NICE guidance.

• Brighton & Hove JSNA Executive summary - a local report on the current and future health, social care and wellbeing needs of the population of Brighton & Hove. Includes information from existing in-depth needs assessments, health and social care data plus local views and experiences
• Community Insight - a community mapping and reporting tool specific to Brighton & Hove and the surrounding areas. View, compare and report on related datasets through maps, dashboards and reports at different geographic levels
• JSNA life expectancy summary - information about life expectancy, healthy life expectancy and the causes contributing to the gaps in life expectancy, including respiratory diseases 
• JSNA healthy places summary - a summary exploring the environment that shapes wellbeing. This summary is in progress
• JSNA cancer summary - a local and national picture of lung cancer and its causes 

• Respiratory disease profile, Office for Health & Disparities (OHID) - contains information about COPD, asthma, pneumonia, other respiratory diseases and associated risk factors.  Includes data from Fingertips, Quality and Outcomes Framework (QOF), Hospital Episode Statistics (HES), Public Health Outcomes Framework (PHOF), Office of National Statistics (ONS) mortality. 

  (previously known as INHALE -the INteractive Health Atlas of Lung conditions in England)

• National General Practice Profiles, (OHID) - these profiles support GPs, Primary Care Networks (PCNs), integrated care boards (ICBs) and local authorities to ensure they are providing and commissioning effective and appropriate healthcare services for their local population. Contains individual practice profiles, summary profiles for PCNs and other geographies. Each practice can be compared with an ICB sub-location (formerly clinical commissioning group or CCG), PCN and England. 
• Segment Tool, (OHID) - information on the causes of death and age groups that are driving inequalities in life expectancy at local area level, including respiratory diseases.  
• Global burden of disease (GBD), The Institute for Health Metrics & Evaluation - a comprehensive picture of mortality and disability across countries, time, age, and sex including respiratory disease and its risk factors. Quantifies health loss from hundreds of diseases, injuries, and risk factors, so that health systems can be improved and disparities addressed. 

• Chronic Respiratory Diseases, World Health Organisation (WHO) - global resource covering an overview, symptoms and treatments plus fact sheets, Q&As and related initiatives.   
• Respiratory insights (Asthma + Lung UK) - a UK charity providing information about living with lung conditions, self-care and treatment. It also connects academic researchers, product innovators, and tech providers with people who have lived experience of a lung condition. Provides research, insights & support. 
• Lung Cancer - Macmillan Cancer Support - a UK Charity that supports people and families with cancer.  Provides emotional, practical, physical, and financial support. 
• Respiratory Search, Cancer Research UK - a UK Charity that improves cancer survival through research and support.   
• Cystic Fibrosis (CF) UK - a UK charity with information on living with CF, treatment, campaigning and research.   
• Pulmonary Hypertension Association UK - offers practical information and support for people living with pulmonary hypertension and their friends and families. 
• Action on Pulmonary Fibrosis - a UK charity that provides information for people living with PF, families, carers and for professionals and those working with them.   

• Respiratory disease profile, Office for Health & Disparities (OHID)- contains information on respiratory diseases and associated risk factors.  
• Air quality statistics (national), GOV.UK - an annual update on concentrations of major air pollutants in the UK. 
• UK Air, Department of Environment, Food & Rural Affairs (DEFRA)- information about air pollution; research on the causes & effects, air quality metrics, air pollution trends & forecasts and plus a science and research library. 
• Smoking & respiratory disease, Action on Smoking & Health (ASH) - a UK charity working with tobacco policy experts providing information, networking and support to address the tobacco epidemic.   
• Data Explorer (CVD Prevent, NHS) - smoking data is included in this Cardiovascular Disease Prevention Audit (CVDPREVENT), a national primary care audit informed by GP data. This tool provides open access at Sussex, Brighton & Hove, Primary Care Networks or GP practice level.  Also includes inequalities markers and the impact on those with learning difficulties. 
• Conditions associated with occupations:
  • Occupational lung disease
  • Asbestos-related lung disease
  • Pneumoconiosis
  • Hypersensitivity pneumonitis
  • Silicosis 

Insight bank - NHS, Sussex

A restricted collection of resources from local and national engagement, partner organisations and commissioners with a focus on health and other population inequalities. All personal information included is anonymous. 

Find out more about the Insight Bank.

Healthwatch (Brighton and Hove)

Healthwatch is the independent watchdog engaging with people and patients from across the city to gather their views, experiences and ideas on health and social care services. 

They work to ensure NHS leaders and other decision makers hear the patient voice and use the feedback to improve care.

Find out more about Healthwatch.   

Community Works

Community Works is the local voluntary, community and social (VCS) infrastructure organisation in Brighton & Hove. Every 5 years they publish a financial and social audit of the sector (“Taking Account”).

Read the most recent report.

They also support the VCS enterprise sector. Voluntary and community organisations may have data available on their websites.

Find a list of local organisations. 

• Respiratory conditions, National Institute for Health & Care Excellence (NICE) - a comprehensive resource for guidance, advice and quality standards for respiratory conditions
• Respiratory disease: applying All Our Health, OHID - this guide is part of ‘All Our Health’, a resource which helps health professionals prevent ill health and promote health and wellbeing as part of their everyday practice
• Pulmonary rehabilitation, NHS England - an exercise and education programme designed for people with lung disease who experience symptoms of breathlessness
• Living well with COPD, NHS inform - simple techniques to manage COPD
• National Centre for Smoking Cessation and Training (NCSCT) - evidence-based tobacco control programmes and smoking cessation interventions provided by local stop smoking services & NHS. Delivers training and assessment programmes, support services and resources for local and national providers