Organisations that support families of children and young people with SEND

  • Seaside View mother daughter with downsAmaze -  Information, advice and support for parent carers of children and young people with any additional need or disability, and for young people themselves.
  • Parent Carers' Council - local forum for parent carers
  • Family Information Service - help with finding childcare, early years funding, family services directory and more
  • Extratime - inclusive after school and holiday play schemes
  • The Carers' Centre - offer support for parents and carers of adults
  • Possability People - offer support and advice for disabled people
  • Parent support groups - for children with any additional need or specific conditions


Amaze is a charity that gives information, advice and support to families of children and young people with special educational needs and disabilities (SEND) in Brighton & Hove and Sussex. Amaze also supports young people with SEND up to 25. Apart from a helpline and publications, Amaze offer lots of other services including help with claiming disability benefits, workshops and courses, face to face befriending at times of particular challenge, peer support for young people and the Compass leisure card. Find out more about Amaze and all their services.

The Parent Carers’ Council (PaCC)

PaCC is a city-wide group for all parent carers who are responsible for children and young people with special needs, including ongoing health conditions, physical disabilities and learning disabilities. The group was formed to enable parent carers of children with any condition to work closely together to help improve services and support. Visit to find out more or join the PaCC

The Family Information Service or FIS

The Family Information Service (FIS) is the best place to start for information about childcare, pre-schools and pre-school activities like playgroups and music groups. If your child has a disability or special need, FIS can offer additional targeted support with finding childcare, contacting possible child carers and researching funding. They also run the At Home Childcare Service for families that introduces experienced child carers to families who would prefer to use a home based child carer. Find out more about the Family Information Service


Extratime run afterschool clubs and holiday schemes in that are fully inclusive for all children and young people with additional needs. The play schemes are run at a variety of locations across the city.  Visit Extratime’s website to find out more

The Carers’ Centre

The Carers Centre provide information, advice and support for carers of adults. This includes support for Young Carers. Visit the Carers Centre website

Possability People

Possability People (formerly known as the Fed) offers advice and support for disabled people. They run a Direct Payments advice service and their website has a PA noticeboard that helps families find Personal Assistants and Personal Assistants find jobs. Visit the Possability People website.

Information Advice and Support Service

Watch this animation funded by the Department of Education to help children and young people with SEND and their parents learn about the service and support on offer from their local Information and Advice Support Service (IASS). 

Parent support groups

There are lots of parent support groups across the city for children with disabilities or specific conditions. Find out more about parent carer support groups.

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